Books and Articles — Chronic and Disabling Conditions

Books for Children and Teens

American Cancer SocietyIt Helps to Have Friends
Beran, RoyLearning About Epilepsy
CohnSomeone I Love Has Cancer
Epilepsy FoundationMe and My World
Gosselin, KimTaking Seizure Disorders to School
Kohlenberg, SherrySammy's Mommy Has Cancer
McNeil, OrthoExpressions of Courage
Meyer, DonaldViews From Our Shoes
Parkenson, CarolynMy Mommy Has Cancer
Sherkin-LengerWhen Mommy is Sick
Shriver, MariaQue le Pasa a Timmy?
Shriver, MariaWhat's Wrong With Timmy?
Stuve-DeVitoWe'll Paint the Octopus Red
Weiner, EllenTaking Seizures to School

Books for Adults

Freeman, JohnSeizures and Epilepsy in Childhood
Greenspan, StanleyThe Child with Special Needs
Lavin, JudithSpecial Kids Need Special Parents
Moshe, SolomonParke Davis Manual on Epilepsy
Nowixki, StephenHelping the Child Who Doesn't Fit In
Schachter, StevenThe Brainstorm Family
Schachter, StevenThe Brainstorm Series
Simons, RobinAfter The Tears
Smith, PatriciaChildren with Epilepsy

Articles and Other Resources

Music boosts recovery from surgery, reduces pain, by Kate Kelland. Reuters, August 12, 2015.  “Listening to music before, during and after surgery reduces patients' pain, eases anxiety and lessens the need for painkillers, British scientists said on Thursday. After reviewing evidence from around 7,000 patients, the scientists said people going for surgery should be allowed to choose the music they'd like to hear to maximize the benefit. But they also warned that the music should not interfere with the medical team's communication during an operation.”

Chronic stress may put TBI caregivers at risk for illness, by Janice Neumann. Reuters, February 12, 2015.  “Women caring for partners with traumatic brain injury (TBI) experience enough grief and stress to put their own health at risk, according to a small study of U.S. veterans’ wives and girlfriends. Anger, blame and grief for the loss of the man they once knew were linked to elevated inflammation levels that raise the women’s risk for chronic disease, researchers say, and not being able to turn to their loved one for support only makes things worse.”

Learning With Disabilities: One Effort To Shake Up The Classroom, by NPR Staff. NPR, April 27, 2014.  “This is what an inclusive classroom looks like: Children with disabilities sit next to ones who've been deemed "gifted and talented." The mixing is done carefully, and quietly. Students don't necessarily know who's working at what level. Despite a court ruling 25 years ago that gave children with disabilities equal access to general education activities, change has been slow. Today, about 17 percent of students with any disability spend all or most of their days segregated. Children with severe disabilities can still expect that separation.”

Play Therapy Promotes Emotional Healing in Kids Battling Chronic Illnesses, by Rick Nauert. Psych Central, November 06, 2013.  “A version of play therapy using medically themed toys appears to help chronically ill children and their siblings express fears and foster hope for recovery. The innovative project, reported in the journal Issues in Comprehensive Pediatric Nursing, primarily focused on chronically ill children and their siblings who were staying at the Ronald McDonald House in Cincinnati, Ohio.”

Study offers clues about how athletes' brain disease begins, by Stephanie Smith. CNN, August 22, 2013.

Study: Migraines May Raise the Risk of Depression in Women, by Alexandra Sifferlin. Time Magazine, February 23, 2012.  “As if having migraine headaches weren't enough of a burden, a new study finds that women with migraines are also more likely to develop depression - about 40% more likely than women who have no history of the headaches.”

Children: Rate of Chronic Health Problems Rises, by Roni Caryn Rabin. New York Times, February 19, 2010.  “Researchers said rates of problems like obesity and asthma doubled in the past 12 years, but many conditions resolved themselves during childhood.”

PANDAS: An Immune- Mediated Mental Illness National Institute of Mental Health, 2011.  “PANDAS, is an abbreviation for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. The term is used to describe a subset of children who have Obsessive Compulsive Disorder (OCD) and/or tic disorders such as Tourette's Syndrome, and in whom symptoms worsen following strep. infections such as "Strep throat" and Scarlet Fever.”

Children with eczema have the same impaired quality of life as those with kidney disease Psych Central, 2009.  “Children with serious skin conditions feel their quality of life is impaired to the same extent as those with chronic illnesses such as epilepsy, renal disease and diabetes, according to research published in the July issue of British Journal of Dermatology.”


Disclaimer: Material on the William James INTERFACE Referral Service website is intended as general information. It is not a recommendation for treatment, nor should it be considered medical or mental health advice. The William James INTERFACE Referral Service urges families to discuss all information and questions related to medical or mental health care with a health care professional.